I just wanted to let you know the outcome of our doctors appointment yesterday. It was our first appointment with the perinatologist at Shands. They performed a level 2 ultrasound. The definite diagnosis of our baby BOY is that he has suffered from Amniotic Band Syndrome. This is a condition in which the inner amniotic membrane ruptured at some point, and in an effort to fuse back together, became tangled within the trunk (from the chest to the pelvis) of our baby. Once the bands are fused back together, they constrict and pull, which ultimately has left all of the organs exposed, including the heart and the lungs. This is a very severe case, with no treatment option.
The doctor gave us only one option, which was to terminate. We do not feel that is an option for us. We have decided to carry our little boy until God sees fit to take him home. Obviously we are devastated to say the least. However, we are holding on to the fact that His plan is always perfect. We know that He has a purpose for our baby, no matter how short his life may be. Please just pray for us that we will have the peace that can come only from Him. These next few weeks are going to be tough, but we know the love of our Savior will sustain us.